Wednesday, January 9, 2013

Day 1 - Musical Beds

Today began with news from the nurse that Will's white blood cell count had dropped to 0.5 and he therefore had qualified for a private room.  It's funny how they work the private rooms in this unit. One has to "qualify" for the room by having labs bad enough to merit solitude.  When lab counts begin to rise, those in isolation get booted back to shared rooms. 
Today Willie was the lucky one.  The nurses went to work trying to decide who they could move to a shared room to free up a private room. I wonder what they do when the patients in the private rooms aren't well enough to move to shared while those in shared need a private room.  It was organized chaos at its finest.
Around 10 AM a woman with a harp showed up at our door and offered to serenade us.  She wheeled a mini harp in the room that was attached to a dolly.  The music was enchanting and it lulled Willie to sleep.  She didn't stay long, but we were glad she came.
The day got even better when the nurse came in and informed me that a massage therapist was coming in the afternoon to give massages to family members.  She wondered if I wanted one.
I think I may have shouted "Yes!" back at her,  I was so excited.
I had a lovely chair massage that made all the problems in the world melt away.  I felt like walking Jello when I returned to the room. 
The nurse came by and told us that Willie's room wasn't ready, but they needed to move him to another room so they could clean his room and move another patient into his room to free up the private room.  She said it's the game of "musical beds" they play every time they change rooms.
It's a ridiculous process to watch.  They cleaned the interim room and moved the bed and furniture into the hall.  Then they pushed the bed (with Willie in it) into the room and moved his night stand and chairs with him.  We were told we would wait in that room for an hour, but it turned into 3 hours! When they finally had the private room cleaned they moved all of the furniture out of it and moved us in.  They then got busy cleaning the room we had been in for 3 hours! 
It seemed like an unnecessary amount of moving things and cleaning things for my taste, but who am I to judge?
Our new room is small, but it's private which is a fair trade. Willie has been feeling pretty good today.  He got a dose of Methotrexate which is an anti-rejection medication to keep his body from refusing the new cells.  This med comes with side effects of mouth sores just like the chemo does.  So far his mouth feels fine so we are keeping our fingers crossed that he will be able to avoid anything too terrible.
That's all the news from our fairly boring day.
Boring is good though.
Very good!

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